My MRI came back as abnormal orbitals. The EYES have it...(OH I made another FUNNY)...
Hahaha...I know I already have retinopathy, but I do think this has to do with the problems seeing I have been having lately, problem with details, my nighttime vision is GONE and colors don't look as bright. BAD STUFF for a graphic designer, lol. I'll just turn up the monitor contrast! There ya go. Fixed.
I'm not jumping ahead and hitting the panic button. It could be from my possible TIA last month. It could be optic neuritis (lupus) it could be something else. For quite awhile I've had this weird feelings behind my left eye, like it's filling up with heavy hot liquid. It's probably somehow exactly what's happening physically. It lasts about 2 minutes or so and then my eye vessels break and eye goes red. I thought it was related to my cranial nerves but EYE (haha did it again) think it might just be my EYE.
LOL I have not been drinking..haha I have no idea why I'm so silly today..???
I also have TN. I have hfs during TN attacks that linger about 4 wks afterwards lowering in intensity as it goes. I don't have an answer why I have cranial neuropathies btw. Not yet. (I also have systemic lupus which is speculated is destroying the myelin sheath on my nerves)
Anyway like many before me, I've gone screaming into my neurologists office before! LOL After an attack that involved all 3 branches of the trigeminal nerve I found out why tic deloroux is called "the suicide disease". It is unfathomable pain.
My neurologist specializes in migraines and MS and dx'd my PN (peripheral neuropathy) about ten yrs ago and I've been seeing him ever since. He is willing to learn and sends me usually for the appropriate tests, MRI's, cartotid ultrasounds (last month TIA scare and sudden outrageous headache) so I feel in pretty decent hands so far. He also is not familiar with the damage lupus can do as a connective tissue disease and autoimmune one, but he's hanging in there with me.
For anyone who says to go see a neurologist who specializes in cranial neuropathies, GOOD LUCK finding one. I'm in Phoenix and so far NO LUCK. I know of neurosurgeons from the hfs site, etc, but not a one neurologist familiar with cranial neuropathies and lupus. Please feel free to let me know if anyone knows of one. (then I have to figure out if he's in network)
My MRI came back today with orbital abnormalities. I have retinopathy and have been having weird eye symptoms lately. A feeling of hot fluid behind my left eye and then the blood vessels pop and my eye goes red. My vision is worse at night, I'm losing some detail in my sight and my eye muscles hurt. Does anyone know if this is cranial nerve related? Or an eye thing?
Anyway I see an opthamologist and retinal specialist end of this month.
Thank you for listening and your time.
Julie
TN, hfs, cranial neuropathies (GN, bells palsy (recurring), BMS (burning mouth syndrome) vagus nerve issues and accessory nerve muscle tonus with TN attacks, Phoenix, AZ
(these are excerpts from my emails today)
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